The Boy Whose Skin Fell Off

36-year-old Jonny Kennedy is an extraordinary man with a terrible condition - Dystrophic Epidermolysis Bullosa (EB) - which means his skin literally falls off at the slightest touch, leaving his body covered in agonising sores and leading to a final fight against skin cancer. In 2003, Jonny decided to work with filmmaker Patrick Collerton to document his last months in an uplifting, confounding and provocatively humorous story of a singular man.Although it never shies away from the grim reality of his illness, this moving film is a celebration of a life lived to the full

Part 1- http://goo.gl/PXLDP

Part 2- http://goo.gl/eUX9v